Ethics Privacy & Consumer Engagement Advisory Group
Role of the PHRN Ethics Privacy & Consumer Engagement Advisory Group
The PHRN nodes link data within and between population-based administrative data collections held in Australian states and territories. There are important ethics and privacy matters that will be addressed as part of this work. In addition, community acceptance of the work of the PHRN and its nodes is important in establishing future engagement and support by Commonwealth, state and territory health agencies and data custodians. To address these issues, the Advisory Group is responsible for the development and implementation of an Ethics and Scientific Review Policy, Privacy Policy and Consumer and Community Participation Policy for approval by the PHRN Management Council. The Advisory Group also provides ethics, privacy and consumer/community participation advice to the PHRN Management Council.
Ethics Privacy & Consumer Engagement Advisory Group Terms of Reference
Current Membership
| Name | Position on Advisory Group |
| Mr Andrew Stanley | Member of the PHRN Management Council (Chair) |
| Prof David Roder | Member with privacy expertise |
| Ms Carolyn Adams | Member with privacy expertise |
| Dr Jane Jacobs | Member with ethics expertise |
| Ms Anne McKenzie | Member with consumer engagement expertise |
| Ms Stephanie Newell | Member with consumer engagement expertise; nominee of the Consumers' Health Forum of Australia |
| Prof Colin Thomson | Member with ethics expertise |
| Ms Teresa Dickinson | Member of the PHRN Management Council |
