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building data linkage infrastructure for Australia

Ethics, Privacy and Consumer Engagement Advisory Group

Role of the PHRN Ethics, Privacy and Consumer Engagement Advisory Group

The PHRN will establish nodes that will link data within and between population-based administrative datasets held in Australian states and territories.  There are significant ethics and privacy issues that will be addressed as part of this work.  In addition, community acceptance of the work of the PHRN and its nodes is important in establishing future engagement and support by Commonwealth, state and territory health agencies and data custodians.  To address these issues, the Advisory Group will be responsible for the development of an Ethics, Privacy and Consumer Engagement Policy for approval by the PHRN Management Council.

Terms of Reference >>click here>>

Current Membership

Name Position on Advisory Group
Mr Andrew Stanley  Member of the PHRN Management Council (Chair)
Dr Vijaya Sundararajan Member of the PHRN Management Council
Prof David Roder Member with privacy expertise
Ms Carolyn Adams Member with privacy expertise
Dr Jane Jacobs Member with ethics expertise
Ms Deborah Frew Member with ethics expertise
Ms Anne Mckenzie Member with consumer engagement expertise
Ms Stephanie Newell Member with consumer engagement expertise; nominee of the Consumers' Health Forum of Australia