Australian Capital Territory

Australian Capital Territory

ACT BDM Birth Registrations
Description: The ACT Registrar of Births, Deaths and Marriages (ACT BDM) keep a permanent record of all registered births.
Date range: 1997 - 2012
Custodian: Contact via the CHeReL
Jurisdiction: Australian Capital Territory
Data Linkage Unit: CHeReL
Variable List: Available
Metadata: Available
Data Quality Statement: Available within metadata

 

ACT BDM Death Registrations
Description: Two datasets contain mortality information for deaths occurring in the ACT: The Registry of Births, Deaths and Marriages (ACT BDM) death registrations and Australian Coordinating Registry (ACR) Cause of Death Unit Record File (COD URF). The ACR COD URF is linked by ACT Health and available from 2006 onwards. 
Date range: 1997 - 2016
Custodian: Contact via the CHeReL
Jurisdiction: Australian Capital Territory
Data Linkage Unit: CHeReL
Variable List: Available
Metadata: Available
Data Quality Statement: Available within metadata

 

Perinatal Data Collection
Description: The ACT Perinatal Data Collection (formerly known as the Midwives Data Collection) is a population-based surveillance system covering all births in ACT public and private hospitals, as well as homebirths. Currently only data from one ACT hospital has been added into the CHeReL Master Linkage Key, this hospital represents approximately half of all births occurring in the ACT each year.

The ACT Perinatal Data Collection (PDC) encompasses all live births, and stillbirths of at least 20 weeks gestation or at least 400 grams birth weight. The ACT PDC includes notifications of births which occur in ACT; it does not receive notifications of interstate births where the mother is resident in ACT.  

The data collection has operated since 1991 but only data from 1997 is considered of sufficient quality for analysis. The ACT PDC has undergone multiple minor revisions over the years, major changes occurred in 2002 and 2008.
Date Range: January 1997 - 2012
Custodian: Contact via the CHeReL
Jurisdiction: Australian Capital Territory
Data Linkage Unit: CHeReL
Variable list: Available
Metadata: Available
Data Quality Statement: Not available

 

Emergency Department Data Collection
Description: The Emergency Department Information System (EDIS) is an administrative data collection that contains de-identified, demographic, administrative and clinical data detailing presentations to Emergency Departments (ED) at public metropolitan hospitals in the ACT. EDIS is based on the "Non-admitted Patient Emergency Department Care‟ National Minimum Data Set (NMDS).

The EDIS is administered by the ACT Government Health Directorate. Information in the EDIS is required under the National Health Care and National Health Information Agreements (NHCA & NHIA).

There are two participating Emergency Departments in the ACT, one at each public hospital. The Emergency Department Information System (EDIS) commenced in 2000, but is only available through the CHeReL Master Linkage Key from July 2005. Currently only data from one ACT public hospital has been added to the CHeReL Master Linkage Key.

The primary purpose of collecting Emergency Department data in ACT is to assist clinicians in the management of patients; and enable comparisons of performance in respect to access to services, quality clinical outcomes, patient management, customer satisfaction and cost effectiveness. Each record in the collection represents a presentation to an emergency department. Diagnoses are recorded by medical, nursing or clerical personnel at the point of care.
Date Range: July 2005 - 2015
Custodian: Contact via the CHeReL
Jurisdiction: Australian Capital Territory
Data Linkage Unit: CHeReL
Variable list: Available
Metadata: Available
Data Quality Statement: Not available

 

Admitted Patient Collection
Description: The ACT Admitted Patient Care (APC) data records all inpatient separations (discharges, transfers and deaths) from all public and private hospitals in ACT. Currently only data from one ACT hospital has been added into the CHeReL Master Linkage Key.

Public hospital APC data are recorded in terms of episodes of care (EOC).  An episode of care ends with the patient ending a period of stay in hospital (e.g. by discharge, transfer or death) or by becoming a different "type" of patient within the same period of stay.  The categories of types of care are listed under the variable "Service Category". For private hospitals, each APC record represents a complete hospital stay. APC data are based on the date of separation (discharge) from hospital.
Date Range: July 2004 - 2015
Custodian: Contact via the CHeReL
Jurisdiction: Australian Capital Territory
Data Linkage Unit: CHeReL
Variable list: Available
Metadata: Available
Data Quality Statement: Not available

 

Cancer Registry
Description: The ACT Cancer Registry (ACT CR) receives notifications of cancer in the ACT. It is managed by the ACT Government Health Directorate, and operates under the authority of the Public Health Act 1997. The Registry maintains a record of all cases of cancer diagnosed in ACT residents since 1994 except basal cell carcinomas and squamous cell carcinomas.

The ACT CR is a case-based registry in which all notifications relating to a particular case of cancer are linked to form a single record. A case of cancer is the occurrence of a malignant neoplasm in a particular person. Therefore a case of malignant melanoma in a particular person counts as one case. If the same person subsequently develops leukaemia, the leukaemia counts as a second case.

The ACT CR provides population-based statistics about cancer incidence, mortality, and case fatality (survival) for the residents of the ACT. The ACT CR collects a minimum data set for each cancer case, including place of residence, sex, date of birth, date of diagnosis, cancer site and morphology, means of diagnosis, whether there were multiple primary sites of cancer, country of birth, and date, place and cause of death, where applicable.

Since 1994, all public and private pathology laboratories, hospitals, radiation oncology clinics and nursing homes in the ACT have been required by law to notify the ACT CR of cancer in people or human tissues. Other sources of information include the Registrar of Births, Deaths and Marriages (BDM) and clinicians.
Date Range: 1994 - 2014
Custodian: Contact via the CHeReL
Jurisdiction: Australian Capital Territory
Data Linkage Unit: CHeReL
Variable list: Available
Metadata: Available
Data Quality Statement: Not available