||The ACT Cancer Registry (ACT CR) receives notifications of cancer in the ACT. It is managed by the ACT Government Health Directorate, and operates under the authority of the Public Health Act 1997. The Registry maintains a record of all cases of cancer diagnosed in ACT residents since 1994 except basal cell carcinomas and squamous cell carcinomas.
The ACT CR is a case-based registry in which all notifications relating to a particular case of cancer are linked to form a single record. A case of cancer is the occurrence of a malignant neoplasm in a particular person. Therefore a case of malignant melanoma in a particular person counts as one case. If the same person subsequently develops leukaemia, the leukaemia counts as a second case.
The ACT CR provides population-based statistics about cancer incidence, mortality, and case fatality (survival) for the residents of the ACT. The ACT CR collects a minimum data set for each cancer case, including place of residence, sex, date of birth, date of diagnosis, cancer site and morphology, means of diagnosis, whether there were multiple primary sites of cancer, country of birth, and date, place and cause of death, where applicable.
Since 1994, all public and private pathology laboratories, hospitals, radiation oncology clinics and nursing homes in the ACT have been required by law to notify the ACT CR of cancer in people or human tissues. Other sources of information include the Registrar of Births, Deaths and Marriages (BDM) and clinicians.