New South Wales

New South Wales

RBDM Birth Registrations
Description: The New South Wales Births Registrations is established under the authority of Births, Death and Marriages Registration Act 1995 and the Births, Deaths and Marriages Registration Regulation 2011. The NSW Births Registrations is administered by the Registry of Births Deaths and Marriages of the New South Wales Department of the Attorney General and Justice.

The Register includes all children born and subsequently registered in New South Wales. Deaths in utero that occur after 20 weeks gestation or at greater than 400 grams are recorded in the BDM Births Register. Although still births are registered as a birth, for reporting purposes these are accounted for in the perinatal death statistics. Where there is sign of life at birth, but the neonate subsequently dies, the birth is recorded in the Births Register and the death is recorded in the Deaths Register.

The parents of a child are jointly responsible for having the child's birth registered. A parent of a child born in NSW and the hospital, or a doctor or registered midwife who attended the birth (if outside a hospital) are each required to supply to the Registrar details relating to the birth of the child. Registration details are entered electronically by Births, Deaths and Marriages staff.
Date Range: January 1994 - 2015
Custodian: Contact via the CHeReL
Jurisdiction: New South Wales
Data Linkage Unit: CHeReL
Variable list: Available
Metadata: Available
Validation studies: Available

 

Perinatal Data Collection
Description: The NSW Perinatal Data Collection (PDC) as of 1 January 2011, formally the Midwives Data Collection (MDC), is managed by the NSW Ministry of Health. It is an administrative data collection which records all births in NSW. Information in the PDC is collected under the NSW Public Health Act 1991, whereby the particulars of births are to be reported to the NSW Ministry of Health as per Section 14(2)(a) of the Act.

The information collected in the PDC is about pregnancy care, services and outcomes. This includes demographic, medical and obstetric information about the mother; and information on the labour, delivery and condition of the infant.

The scope of the PDC is all births in NSW public and private hospitals, and home births. This includes women whose usual place of residence is outside NSW, who gave birth in NSW. It encompasses all live births and stillbirths of at least 20 weeks gestation or at least 400 grams birth weight. (Since 2006 all live births have been included, regardless of gestational age.) Births that occurred outside NSW to women usually resident in NSW are not included in the collection.
Date Range: January 1994 - 2015
Custodian: Contact via the CHeReL
Jurisdiction: New South Wales
Data Linkage Unit: CHeReL
Variable list: Available
Metadata: Available
Validation studies: Available

 

Emergency Department Data Collection
Description: The Emergency Department Data Collection is an administrative data collection that contains de-identified, demographic, administrative and clinical data detailing presentations to Emergency Departments (ED) at public metropolitan hospitals in New South Wales. The EDDC is based on the "Non-admitted Patient Emergency Department Care‟ National Minimum Data Set (NMDS).

The EDDC is administered by the NSW Ministry of Health. Information in the EDDC is required under the National Health Care and National Health Information Agreements (NHCA & NHIA).

Each record in the collection represents a presentation to the emergency department of a public hospital. The primary purpose of the Emergency Department Data Collection is to assist clinicians in the management of patients; and enable comparisons of performance in respect to access to services, quality clinical outcomes, patient management, customer satisfaction and cost effectiveness. The diagnoses in the EDDC are recorded by medical, nursing or clerical personnel at the point of care.
Date Range: January 2005 - 2016
Custodian: Contact via the CHeReL
Jurisdiction: New South Wales
Data Linkage Unit: CHeReL
Variable list: Available
Metadata: Available
Validation studies: Available

 

Admitted Patient Data Collection
Description: The Admitted Patient Data Collection (formerly Inpatient Statistics Collection) is administered by the NSW Ministry of Health. Reporting to this data collection is a requirement under the Health Service Act 1997 for public hospitals, and the Private Health Facilities Act 2007 and Health Insurance Act 1973' for private hospitals. (abs.gov.au)

The Admitted Patient Data Collection is an admitted patient morbidity data collection designed to provide NSW Health with the information resources necessary to effectively organise, evaluate and plan health services in New South Wales.

The collection contains information about all health services provided on an admitted patient basis by Public Hospitals, Public Psychiatric Hospitals, Multi-Purpose Services, Private Hospitals and Private Day Procedure Centres in NSW.
Date Range: 2001 - 2016
Custodian: Contact via the CHeReL
Jurisdiction: New South Wales
Data Linkage Unit: CHeReL
Variable list: Available
Metadata: Available
Validation studies: Available

 

Mental Health Ambulatory Data Collection
Description: The Mental Health Ambulatory Data Collection (MH-AMB) is held within the State Health Information Exchange. The MH-AMB is dedicated to the assessment, treatment, rehabilitation or care of non-admitted patients. It may include mental health day programs, psychiatric outpatients and outreach services. Also included is care provided by hospital based consultation-liaison services to admitted patients in non-psychiatric and hospital emergency settings; same-day admitted non-procedural care; care provided by community workers to admitted patients and clients in staffed community residential settings and mental health promotion and prevention services.
Date Range: January 2001 - 2015
Custodian: Contact via the CHeReL
Jurisdiction: New South Wales
Data Linkage Unit: CHeReL
Variable list: Available
Metadata: Available
Validation studies: Not available

 

Notifiable Conditions Information System
Description: The NSW Notifiable Conditions Management System is a register of diagnoses of certain infectious diseases and adverse events following immunisation. The Notifiable Conditions Information Management System (NCIMS) is a confidential application used to manage the surveillance and reporting of diseases and conditions notifiable under the NSW Public Health Act 2010. NCIMS is used by Health Protection NSW and the NSW Public Health Units.

Cases are notified to the NSW Ministry of Health by laboratories, hospitals, medical practitioners, schools, and child care centres. Access to NCIMS is restricted to eligible employees from Health Protection NSW and the NSW Public Health Units.
Date Range: January 1993 - 2015
Custodian: Contact via the CHeReL
Jurisdiction: New South Wales
Data Linkage Unit: CHeReL
Variable list: Not available
Metadata: Not available
Validation studies: Not available

 

Central Cancer Registry
Description: The NSW Central Cancer Registry is the agency established under the Public Health Act 1991, to receive notifications of cancer in New South Wales. The Registry is part of the Cancer Services and Information Division of the Cancer Institute NSW. The NSW Central Cancer Registry is funded and managed by the Cancer Institute NSW on behalf of the NSW Ministry of Health.

Data collected include demographic information, brief medical details describing the cancer and a record of at least one episode of care. The data are supplemented by pathology reports and death certificates.
Date Range: January 1972 - 2012
Custodian: Contact via the CHeReL
Jurisdiction: New South Wales
Data Linkage Unit: CHeReL
Variable list: Available
Metadata: Available
Validation studies: Available

 

Perinatal Death Review Database
Description: The Perinatal Death Review Database includes information on about 800 perinatal deaths per year. The information is obtained from confidential reviews carried out by the NSW Maternal and Perinatal Committee, which is a quality assurance committee appointed by the Minister for Health to review perinatal morbidity and mortality in NSW. Deaths are classified according to the Perinatal Mortality Classifications of the Perinatal Society of Australia and New Zealand.
Date Range: January 2000 - 2012
Custodian: Contact via the CHeReL
Jurisdiction: New South Wales
Data Linkage Unit: CHeReL
Variable list: Available
Metadata: Available
Validation studies: Not available

 

RBDM Death Registrations and NSW Mortality Data
Description: All deaths for which a coronial inquiry is not required must be certified as to cause and date by a registered medical practitioner and the certificate registered by the Registrar of Births, Deaths and Marriages (RBDM) in each State and Territory.  Deaths that are referred to a coroner are registered by the coroner at the conclusion of an inquiry into the circumstances of the death.  The vast majority of non-coronial deaths are registered with the relevant RBDM within four weeks of the date of death; however coronial inquiries can take months or even years to conclude.

Details of all registered deaths are forwarded to the Australian Bureau of Statistics (ABS).  The ABS then check and code the information.  A single code for an underlying cause of death was applied in the years to 1997. From 1997 multiple cause of death codes (ICD-10) were applied to each death record where more than one cause contributed to the death.

Two datasets contain mortality information: Registry of Births, Deaths and Marriages (RBDM) death registration data and the Australian Bureau of Statistics (ABS) death registration data. Only the ABS mortality data includes ABS coded cause of death variables.
Date Range: January 1985 - 2014
Custodian: Contact via the CHeReL
Jurisdiction: New South Wales
Data Linkage Unit: CHeReL
Variable list: Available
Metadata: Available
Validation studies: Not available