Ethics, Privacy and Consumer Engagement Advisory Group
Ethics, Privacy and Consumer Engagement Advisory Group
The Advisory Group is a sub-committee of the PHRN Management Council and provides advice to the main governing body around ethics, privacy and consumer/community issues relevant to the Network.
Membership of the Advisory Group includes two health consumers (one a nominee of Consumers' Health Forum of Australia), as well as individuals with expertise in the areas of ethics and privacy.
One of the main tasks of the Advisory Group has been to develop a Network-wide policy on Consumer and Community Participation. The policy relates to both the planning and operation of the data linkage infrastructure as well as the expectations of researchers who use the linked data to undertake their research.
The Advisory Group is now developing guidelines to assist in the
implementation of the Policy and will actively monitor its
application by all PHRN Participants.
Ms Anne McKenzie and Ms Stephanie Newell are the consumer
representatives on the PHRN Ethics, Privacy and Consumer Engagement
Advisory Group. Read more
Ethics Privacy & Consumer Engagement Advisory Group Terms of Reference
Current Membership
| Name | Position on Advisory Group |
| Mr Andrew Stanley | Member of the PHRN Management Council (Chair) |
| Prof David Roder | Member with privacy expertise |
| Ms Carolyn Adams | Member with privacy expertise |
| Dr Jane Jacobs | Member with ethics expertise |
| Ms Anne McKenzie | Member with consumer engagement expertise |
| Ms Stephanie Newell | Member with consumer engagement expertise; nominee of the Consumers' Health Forum of Australia |
| Prof Colin Thomson | Member with ethics expertise |
| Ms Teresa Dickinson | Member of the PHRN Management Council |
