What is Data Linkage?

What is Data Linkage?

What is data linkage?

Data linkage, in simple terms, is a method of bringing together information, from different sources, but relating to the same individual or event. PHRN data linkage units link existing information from different health and health related data collections to provide data to researchers approved research. This is done using methods which minimise the risks to individual privacy.

What are the benefits of data linkage?

Many of our life experiences from the moment we are born until our death generate data that is collected and used for a range of purposes. For example, information is routinely collected when you go to school, visit a hospital, when you get married or divorced and when you have a baby. This data is collected by different organisations all over Australia.

Linking this data together is essential for a wide range of research including:

  • Studies of rare diseases and rare outcomes
  • Studies of across the life course
  • Real world evaluation of policies, services, drugs and devices

For examples of research conducted using linked data click here.

 

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UPDATES

PHRN COVID-19 Offering

Our network remains open. The network is interoperable & can source expertise, technology & data from around the country. Our expert staff are highly qualified & experienced in linkage of patient data, including population-based administrative data as well as linkage of research cohort data. In addition, we provide secure file transfer & secure remote access services. We are able to work with other NCRIS capabilities to deliver coordinated access to national research infrastructure.

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NEWS & EVENTS

LATEST NEWS

Australia's national research infrastructure response to COVID-19. From developing and testing vaccines to designing treatment drugs & manufacturing PPE. Check this interactive infographic to know how Australia's national research infrastructure is responding to COVID-19.

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