What is Data Linkage?

What is Data Linkage?

What is data linkage?

Data linkage, in simple terms, is a method of bringing together information, from different sources, but relating to the same individual or event. PHRN data linkage units link existing information from different health and health related data collections to provide data to researchers approved research. This is done using methods which minimise the risks to individual privacy.

What are the benefits of data linkage?

Many of our life experiences from the moment we are born until our death generate data that is collected and used for a range of purposes. For example, information is routinely collected when you go to school, visit a hospital, when you get married or divorced and when you have a baby. This data is collected by different organisations all over Australia.

Linking this data together is essential for a wide range of research including:

  • Studies of rare diseases and rare outcomes
  • Studies of across the life course
  • Real world evaluation of policies, services, drugs and devices

For examples of research conducted using linked data click here.

 

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HPV VACCINE

CASE STUDY

Data linkage has a significant role in reduction of cervical cancer in Australia. The HPV vaccine was introduced in 2007, success of the vaccine was monitored by linking vaccine registers to cervical smear registers in Queensland & Victoria.

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NEWS & EVENTS

LATEST NEWS

Read IJPDS' special issue on population data centre profiles featuring PHRN. With articles from population data centres across the world, this special issue represents a unique resource, bringing together into one place a wealth of information.

From 20 December 2019 the PHRN OAS will not be monitored. Normal operations will resume on 6 January 2020.

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