Who Is Involved?

Who Is Involved?

Who is involved in data linkage?

There are three groups involved in data linkage and access processes.

  • Data Custodians are the people who look after the data collections. Data custodians work within an organisation or agency (such as a government department) and are responsible for the secure collection, use and disclosure of data. Data custodians collect and store personal information (eg. name, address, date of birth) and also content information (e.g. health information such as diagnosis and treatment details).

  • Data Linkers are the people who create Linkage IDs which allow data to be linked within and between data collections. Data linkers work in a Data Linkage Unit that is either within, or associated with, a government agency.

  • Researchers are the people who use the data for the purpose of analysis and research. This is only possible after an extensive application process and approval by all relevant data custodians and a Human Research Ethics Committee (HREC).

PHRN Infrastructure

For more information on the PHRN Infrastructure and contact details of the Data Linkage Units click here

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UPDATES

COVID-19

PHRN is closely monitoring the COVID-19 situation and has taken steps to mitigate the risk of transmission to our staff. In line with advice on social distancing, all staff at PHRN program office have moved to work from home. Staff are currently all working in line with our usual work patterns and our landline numbers are being diverted to staff at home, so will either be answered, or it will be possible to leave a voicemail. Please bear with us as we move to this new way of working. We will be participating in any meetings we need to attend remotely via Zoom. We are reviewing our work plans in light of the current situation and will make changes as required to ensure we are serving our network, researchers and community in this changing situation.

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NEWS & EVENTS

LATEST NEWS

WA Department of Health is seeking to establish a contract for the provision of an expert resource which will provide consultation to the Department of Health and the Department of Jobs, Tourism and Industry on a joint initiative. The ‘Strategic Linkage Advisor’, will provide strategic linkage advice, research, analysis, stakeholder management and inter-governmental coordination on matters relating to data linkage.

PHRN ONLINE APPLICATION SYSTEM (OAS)