Who Is Involved?

Who Is Involved?

Who is involved in data linkage?

There are three groups involved in data linkage and access processes.

  • Data Custodians are the people who look after the data collections. Data custodians work within an organisation or agency (such as a government department) and are responsible for the secure collection, use and disclosure of data. Data custodians collect and store personal information (eg. name, address, date of birth) and also content information (e.g. health information such as diagnosis and treatment details).

  • Data Linkers are the people who create Linkage IDs which allow data to be linked within and between data collections. Data linkers work in a Data Linkage Unit that is either within, or associated with, a government agency.

  • Researchers are the people who use the data for the purpose of analysis and research. This is only possible after an extensive application process and approval by all relevant data custodians and a Human Research Ethics Committee (HREC).

PHRN Infrastructure

For more information on the PHRN Infrastructure and contact details of the Data Linkage Units click here

shutterstock_586204247 Hospital Theatre.jpg
HPV VACCINE

CASE STUDY

Data linkage has a significant role in reduction of cervical cancer in Australia. The HPV vaccine was introduced in 2007, success of the vaccine was monitored by linking vaccine registers to cervical smear registers in Queensland & Victoria.

iStock-525755929 - Researcher in Meeting.jpg
NEWS & EVENTS

LATEST NEWS

BOOK NOW! Australia's Data Future Symposium, 21 November 2019, Sydney. Read the program.

HOW TO APPLY FOR CROSS-JURISDICTIONAL LINKED DATA

ONLINE APPLICATION SYSTEM