Who Is Involved?

Who Is Involved?

Who is involved in data linkage?

There are three groups involved in data linkage and access processes.

  • Data Custodians are the people who look after the data collections. Data custodians work within an organisation or agency (such as a government department) and are responsible for the secure collection, use and disclosure of data. Data custodians collect and store personal information (eg. name, address, date of birth) and also content information (e.g. health information such as diagnosis and treatment details).

  • Data Linkers are the people who create Linkage IDs which allow data to be linked within and between data collections. Data linkers work in a Data Linkage Unit that is either within, or associated with, a government agency.

  • Researchers are the people who use the data for the purpose of analysis and research. This is only possible after an extensive application process and approval by all relevant data custodians and a Human Research Ethics Committee (HREC).

PHRN Infrastructure

For more information on the PHRN Infrastructure and contact details of the Data Linkage Units click here

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UPDATES

PHRN COVID-19 Offering

Our network remains open. The network is interoperable & can source expertise, technology & data from around the country. Our expert staff are highly qualified & experienced in linkage of patient data, including population-based administrative data as well as linkage of research cohort data. In addition, we provide secure file transfer & secure remote access services. We are able to work with other NCRIS capabilities to deliver coordinated access to national research infrastructure.

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NEWS & EVENTS

LATEST NEWS

Australia's national research infrastructure response to COVID-19. From developing and testing vaccines to designing treatment drugs & manufacturing PPE. Check this interactive infographic to know how Australia's national research infrastructure is responding to COVID-19.

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