Yesterday, we had the privilege of bringing together an exceptional group of participants for the CROSS Link Co Design Workshop in Melbourne.
The workshop brought together consumers, Clinical Quality Registry leaders, data linkage experts, legal and ethics specialists, policymakers and data custodians to collaboratively explore what enduring linkage of CQR data to administrative data needs in order to work – legally, ethically, efficiently, and with community trust.
Rather than starting with solutions, we focused on:
• what gets in the way of enduring linkage
• what must be true for it to be safe, legitimate and workable
• what really matters when defining minimum governance requirements
The depth of discussion, willingness to surface hard trade-offs, and respect for different perspectives made for a genuinely constructive co-design process.
This workshop forms a key part of the CROSS Link project, which aims to develop a national governance framework to support enduring linkage of CQR data with administrative data, moving away from ad hoc, project-by-project approaches and toward something more sustainable.
Thank you to everyone who contributed their time, expertise and openness. The insights generated yesterday will directly inform the next phase of the project: drafting the governance framework.
More to come. Meantime, learn more via our CROSS-Link webpage or webinar.


