Requirements for Access

Requirements for Access

Eligibility Requirements

Eligible research

The purposes for which access to linkable health and related data will be provided are:

  • To facilitate research which may contribute to the promotion, protection and maintenance of the health of the public;
  • To facilitate the planning, evaluation and delivery of health services; and
  • To contribute to knowledge regarding research methodologies relating to health data collection, linkage of health-related data and compilation and use of health related statistics generally.

Eligible researchers

Linkable health and related data will be provided to:

  • Researchers with the appropriate experience, qualifications, facilities and funding to conduct the proposed research;
  • Students and early career data users who are part of a research team with appropriate experience and qualifications; and
  • International collaborators, depending on the nature of the project and the form of the data requested.

Prioritisation of Researcher Access

Access by researchers for meritorious research will generally be provided on a first come first served basis. However, the following factors may be taken into consideration when prioritising access:

  • Data availability;
  • Complexity of project/technical feasibility;
  • Public interest;
  • Resource availability e.g. funding
  • National Health Priority Areas determined by the Australian Health Ministers' Conference; and
  • Strategic priorities.

Approvals

Data linkage requires the use of personal information to make the initial link between data sets and since this is usually done without consent significant legal and ethical issues are engaged. In Australia, research projects using linked data must be approved by three parties:

  1. the data linkage unit;
  2. the data custodian responsible for each data set; and
  3. a Human Research Ethics Committee (HREC).

The process of obtaining approvals, the order in which approvals must be obtained and the level of assistance provided with data custodian approvals differs between Data Linkage Units. To determine whether approval can be done directly with the data custodian or needs to occur through the DLU contact the local data linkage unit client services officer. Information about the approval process for the jurisdiction(s) from which you are obtaining data can be obtained by visiting the DLU website or by contacting the client services officer. Depending on the Data Linkage Unit involved, client services may offer assistance with data custodian approvals.  

Contact details for the client services contact for each jurisdiction is provided here.

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UPDATES

COVID-19

PHRN is closely monitoring the COVID-19 situation and has taken steps to mitigate the risk of transmission to our staff. In line with advice on social distancing, all staff at PHRN program office have moved to work from home. Staff are currently all working in line with our usual work patterns and our landline numbers are being diverted to staff at home, so will either be answered, or it will be possible to leave a voicemail. Please bear with us as we move to this new way of working. We will be participating in any meetings we need to attend remotely via Zoom. We are reviewing our work plans in light of the current situation and will make changes as required to ensure we are serving our network, researchers and community in this changing situation.

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NEWS & EVENTS

LATEST NEWS

WA Department of Health is seeking to establish a contract for the provision of an expert resource which will provide consultation to the Department of Health and the Department of Jobs, Tourism and Industry on a joint initiative. The ‘Strategic Linkage Advisor’, will provide strategic linkage advice, research, analysis, stakeholder management and inter-governmental coordination on matters relating to data linkage.

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