Australian Institute of Health and Welfare

Australian Institute of Health and Welfare

Commonwealth

Australian Cancer Database
Description: The Australian Cancer Database (ACD) is a data collection of all primary, malignant cancers diagnosed in Australia since 1982, except BCC and SCC of the skin. Data from the ACD are used to report on national cancer statistics such as incidence, trends, projections, survival and prevalence.

The ACD includes the following details in line with the agreed minimum data set but is not limited to: name; sex; date of birth; Indigenous status; country of birth; and date, age and cancer details for each diagnosis.

The ACD is compiled at the AIHW from cancer data provided by state and territory cancer registries through the Australasian Association of Cancer Registries. These population-based cancer registries receive information on cancer diagnoses from a variety of sources, such as: hospitals; pathology laboratories; radiotherapy centres; and registries of births, deaths and marriages.

Data collection and coding practices are standardised when state and territory data are compiled into a single, national database.
Date Range: The ACD is a data collection of all primary, malignant cancers diagnosed in Australia since 1982. (Note: (i) national data on non-melanoma skin cancers, besides BCC and SCC, are complete from 2001 only, and (ii) data on myelodysplastic syndromes and some myeloproliferative cancers are complete from 2003 only.) Data is available up to 2015 except for NSW (only up to 2014).
Custodian: Unit Head, Cancer & Screening Unit
Jurisdiction: National
Data Linkage Unit: AIHW
Variable list: Available
Meta Data: Available
Data Quality Statement: Available

 

Medicare Benefits Schedule (MBS)
Description: The Medicare Program (‘Medicare’) provides access to medical and hospital services for all Australian residents and certain categories of visitors to Australia. It includes a current and historical record of all medical and hospital services that are subsidised by the Government under the Medicare Benefits Schedule (MBS). The information is used for essential analysis of the MBS, for example investigating service use and costs.
Date Range: February 1984 to present
Custodian: AIHW liaises with the Department of Health who grant approval for linkage projects to access MBS data
Contact AIHW at linkage@aihw.gov.au
Jurisdiction: National
Data Linkage Unit: AIHW, ABS
Variable list: Contact linkage@aihw.gov.au for a list of variables that are currently available.
Meta Data: Available
Data Quality Statement: Not available

 

Pharmaceutical Benefits Schedule (PBS)
Description: The Pharmaceutical Benefits Scheme data system (PBDS) comprises current and historical record of all prescriptions that are:
  • subsidised by the Government under the Pharmaceutical Benefits Scheme (PBS) - data from 1 July 2002 to the present; and
  • priced below the patient co-payment and not subsidised (co-payment prescriptions) – data from 1 April 2012 to the present.
The information is used for essential analysis of the PBS, including modelling and monitoring of the budget process, monitoring of Community Pharmacy Agreements and implementation/monitoring of risk sharing arrangements with drug companies.

Date Range: From 1 July 2002 to the present for subsidised prescriptions
From 1 April 2012 to the present for co-payment prescriptions
Custodian: AIHW liaises with the Department of Health who grant approval for linkage projects to access PBS data
Contact AIHW at inkage@aihw.gov.au 
Jurisdiction: National
Data Linkage Unit: AIHW
Variable list: Contact linkage@aihw.gov.au for a list of variables that are currently available.
Meta Data: Available
Data Quality Statement: Not available

 

National Death Index
Description: The National Death Index (NDI) is a database, housed at the Australian Institute of Health and Welfare, which contains records of all deaths occurring in Australia since 1980. The Index is designed to facilitate the conduct of epidemiological studies and its use is strictly confined to medical research.

The NDI database comprises the following variables for each deceased person: name, date of birth (or estimated year of birth), age at death, sex, date of death, state/territory of registration, registration number. Cause of death information in a coded form is also available. For records to 1996, only the code for underlying cause of death is available. For records from 1997, the codes for the underlying cause of death and all other causes of death mentioned on the death certificate are available.

Fact of death is updated monthly (usually by midway through the subsequent month). In general, there is a period of around 18 months until AIHW has access to cause of death data of recent deaths (e.g.cause of death data for deaths registered in 2013 may only become available mid 2015 or later).

Data in the NDI are obtained from the Registrars of Births, Deaths and Marriages in each state and territory.
Date Range: Fact of death 1980 to present (updated monthly).
Cause of death data from 1980 to 2017 (updated annually).
Up to 1997 only 'Underlying cause of death' data available.
Since 1997 'Other causes of death' data is available
Data Custodian: Unit Head, Data Linkage Unit
Jurisdiction: National
Data Linkage Unit: AIHW
Variable list: Available
Meta Data: Not available
Data Quality Statement: Available

 

 

 

 

 

 

 

 

     

National Aged Care Clearing House
Description:

An independent and central repository of national aged care data, the holdings are complex and include:

  • a relational database comprising 55 tables, most relating to aged care programs under the Aged Care Act 1997
  • activity data for

- residential aged care programs,
- community-based aged care packages,
- Transition Care program (TCP),
- Aged Care Assessment Program (ACAP),
- Aged Care Funding Instrument (ACFI),
- Home and Community Care (HACC) and
- Commonwealth Home Support Program (CHSP)

  • recipient details, payment subsidies, and service (facility/provider) details

Data are refreshed annually (including full replacement of historical data) by the Department of Health and are sourced from Human Services payment systems, centralised client record systems and minimum datasets.

Date Range: For linkage purpose: from 2002 to 2017 inclusive
Data Custodian: Ageing and Aged Care Unit
Jurisdiction: National
Data Linkage Unit: AIHW
Variable list: Contact linkage@aihw.gov.au
Meta Data: Under review
Data Quality Statement: Available

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

DOMINO (Data Over Multiple Individual Occurrences)
Description

DOMINO is comprised of 23 tables containing information on individuals who receive income support payments from the Department of Social Services. DOMINO contains information on:
- recipients’ demographics,
- benefits history,
- concessions,
- education (where available) and
- housing

Date Range: For linkage purpose: from 2002 to 2017 inclusive
Data Custodian: Ageing and Aged Care Unit
Jurisdiction: National
Data Linkage Unit: AIHW
Variable list: Contact linkage@aihw.gov.au
Meta Data: Under review
Data Quality Statement: Available

 

 

 

 

    

Australian Early Development Census
Description:

Children's early development has a profound impact on their future health, development, learning and wellbeing.

The Australian Early Development Census (AEDC) is a measure of children's development, based on the scores from a teacher-completed checklist in their first year of formal schooling (the preparatory year prior to Year 1). It is measured across the following five domains:

  • physical health and wellbeing
  • social competence
  • emotional maturity
  • language and cognitive skills
  • communications skills and general knowledge.
Date Range: 2009, 2012, 2015, 2018
Data Custodian: AIHW Unit Head of Justice and Education or contact linkage@aihw.gov.au
Jurisdiction: National
Data Linkage Unit: AIHW
Variable list: Refer to Data Dictionary from AEDC website. Contact linkage@aihw.gov.au
Meta Data: Refer to Data Dictionary from AEDC website
Data Quality Statement: Not available

 

 

 

 

 

 

 

 

 

Note: There are additional data collections that may be available for linkage that are not routinely linked. Please visit the website of the jurisdictional linkage units for a complete list of data collections currently available to researchers for linkage.

 

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UPDATES

COVID-19

PHRN is closely monitoring the COVID-19 situation and has taken steps to mitigate the risk of transmission to our staff. In line with advice on social distancing, all staff at PHRN program office have moved to work from home. Staff are currently all working in line with our usual work patterns and our landline numbers are being diverted to staff at home, so will either be answered, or it will be possible to leave a voicemail. Please bear with us as we move to this new way of working. We will be participating in any meetings we need to attend remotely via Zoom. We are reviewing our work plans in light of the current situation and will make changes as required to ensure we are serving our network, researchers and community in this changing situation.

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NEWS & EVENTS

LATEST NEWS

WA Department of Health is seeking to establish a contract for the provision of an expert resource which will provide consultation to the Department of Health and the Department of Jobs, Tourism and Industry on a joint initiative. The ‘Strategic Linkage Advisor’, will provide strategic linkage advice, research, analysis, stakeholder management and inter-governmental coordination on matters relating to data linkage.

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