Evaluating Risk

Evaluating Risk

Identifiability

The most common risk associated with data linkage is the risk to privacy. The seriousness of the risks associated with the use of personal information will be affected by the degree of identifiability of the information. According to the National Statement on Ethical Conduct in Human Research (2007, updated 2018), identifiability exists on a continuum. Researchers need to consider how likely it is that the identity of individuals can be ascertained from the information involved in a project. Element 4: Collection, Use and Management of Data and Information contained in the National Statement on Ethical Conduct in Human Research (2007, updated 2018) addresses ethical issues related to generation, collection, access, use, analysis, disclosure, storage, retention, disposal, sharing and re-use of data or information.

Useful resources

Researchers should be guided by information compiled by Office of the Australian Information Commissioner and its state and territory equivalents, the Australian Bureau of Statistics and the Australian National Data Service, in tandem with the National Statement on Ethical Conduct in Human Research (2007, updated 2018).

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HPV VACCINE

CASE STUDY

Data linkage has a significant role in reduction of cervical cancer in Australia. The HPV vaccine was introduced in 2007, success of the vaccine was monitored by linking vaccine registers to cervical smear registers in Queensland & Victoria.

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NEWS & EVENTS

LATEST NEWS

Read IJPDS' special issue on population data centre profiles featuring PHRN. With articles from population data centres across the world, this special issue represents a unique resource, bringing together into one place a wealth of information.

From 20 December 2019 the PHRN OAS will not be monitored. Normal operations will resume on 6 January 2020.

PHRN ONLINE APPLICATION SYSTEM (OAS)