Evaluating Risk

Evaluating Risk

Identifiability

The most common risk associated with data linkage is the risk to privacy. The seriousness of the risks associated with the use of personal information will be affected by the degree of identifiability of the information. According to the National Statement on Ethical Conduct in Human Research (2007, updated 2018), identifiability exists on a continuum. Researchers need to consider how likely it is that the identity of individuals can be ascertained from the information involved in a project. Element 4: Collection, Use and Management of Data and Information contained in the National Statement on Ethical Conduct in Human Research (2007, updated 2018) addresses ethical issues related to generation, collection, access, use, analysis, disclosure, storage, retention, disposal, sharing and re-use of data or information.

Useful resources

Researchers should be guided by information compiled by Office of the Australian Information Commissioner and its state and territory equivalents, the Australian Bureau of Statistics and the Australian National Data Service, in tandem with the National Statement on Ethical Conduct in Human Research (2007, updated 2018).

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UPDATES

PHRN COVID-19 Offering

Our network remains open. The network is interoperable and can source expertise, technology and data from around the country. Our expert staff are highly qualified and experienced in linkage of patient data, including population-based administrative data (such as hospital admissions, notifiable diseases and death data) as well as linkage of research cohort data. In addition, we provide secure file transfer and secure remote access services. We are able to work with other NCRIS capabilities to deliver coordinated access to national research infrastructure.

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