Summary of Responsibilities

Summary of Responsibilities

Summary of Responsibilities

In order to meet your research conduct; ethical and legal responsibilities as a researcher you will need to meet the following general requirements and standards. A range of specific requirements will be outlined in your HREC approval/s and confidentiality/data transfer agreement/s.

Conduct of the Study

  • Conduct the study and deal with the project data only in accordance with the procedures specified in the approved protocol for the research project.

Restrictions on use, access, and disclosure

  • Only collect, use or disclose the project data for the conduct of the research project and not for any other purpose;
  • Do not merge the project data with any other information set, including information files provided for two separate projects unless you have approval to do so.
  • Do not attempt to identify or make unauthorised contact with any individual or to provide the project data to another person.
  • Do not publish any information which discloses the identity of an individual unless the individual has given their written consent to be identified in the publication.

Disclosure as required by law

  • In some (rare) circumstances you may be required by law to disclose information. In this situation you should contact the data custodian immediately.

Protection of information

  • You must protect the project data against loss, unauthorised use, access, modification or disclosure according to the approved data security plan (as described in your data application/ethics application)

Disposal of Confidential Information

  • You must conduct any tasks relating to the retention and disposal of the project data in accordance with the approved retention and disposal Plan for the project.

Breaches

  • You must notify both the HREC/s and the data custodian/s of any breach of the approved protocol for the research project, including any breaches of security, complaints, adverse events or other relevant circumstances relating to your research project.
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UPDATES

PHRN COVID-19 Offering

Our network remains open. The network is interoperable & can source expertise, technology & data from around the country. Our expert staff are highly qualified & experienced in linkage of patient data, including population-based administrative data as well as linkage of research cohort data.

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NEWS & EVENTS

LATEST NEWS

Our next Linkage Luminaries webinar will be taking place on Wednesday 28 April at 12noon AEST, 11.30am ACST, 10am AWST with Professor John Lynch and Dr Rhiannon Pilkington from the University of Adelaide.

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