Summary of Responsibilities

Summary of Responsibilities

Summary of Responsibilities

In order to meet your research conduct; ethical and legal responsibilities as a researcher you will need to meet the following general requirements and standards. A range of specific requirements will be outlined in your HREC approval/s and confidentiality/data transfer agreement/s.

Conduct of the Study

  • Conduct the study and deal with the project data only in accordance with the procedures specified in the approved protocol for the research project.

Restrictions on use, access, and disclosure

  • Only collect, use or disclose the project data for the conduct of the research project and not for any other purpose;
  • Do not merge the project data with any other information set, including information files provided for two separate projects unless you have approval to do so.
  • Do not attempt to identify or make unauthorised contact with any individual or to provide the project data to another person.
  • Do not publish any information which discloses the identity of an individual unless the individual has given their written consent to be identified in the publication.

Disclosure as required by law

  • In some (rare) circumstances you may be required by law to disclose information. In this situation you should contact the data custodian immediately.

Protection of information

  • You must protect the project data against loss, unauthorised use, access, modification or disclosure according to the approved data security plan (as described in your data application/ethics application)

Disposal of Confidential Information

  • You must conduct any tasks relating to the retention and disposal of the project data in accordance with the approved retention and disposal Plan for the project.

Breaches

  • You must notify both the HREC/s and the data custodian/s of any breach of the approved protocol for the research project, including any breaches of security, complaints, adverse events or other relevant circumstances relating to your research project.
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HPV VACCINE

CASE STUDY

Data linkage has a significant role in reduction of cervical cancer in Australia. The HPV vaccine was introduced in 2007, success of the vaccine was monitored by linking vaccine registers to cervical smear registers in Queensland & Victoria.

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NEWS & EVENTS

LATEST NEWS

Read IJPDS' special issue on population data centre profiles featuring PHRN. With articles from population data centres across the world, this special issue represents a unique resource, bringing together into one place a wealth of information.

From 20 December 2019 the PHRN OAS will not be monitored. Normal operations will resume on 6 January 2020.

PHRN ONLINE APPLICATION SYSTEM (OAS)