What is Data Linkage

What is Data Linkage

What is data linkage?

Data linkage, in simple terms, is a method of bringing together information, from different sources, but relating to the same individual or event. PHRN data linkage units link existing information from different health and health related data collections to provide data to researchers approved research. This is done using methods which minimise the risks to individual privacy.

What are the benefits of data linkage?

Many of our life experiences from the moment we are born until our death generate data that is collected and used for a range of purposes. For example, information is routinely collected when you go to school, visit a hospital, when you get married or divorced and when you have a baby. This data is collected by different organisations all over Australia.

Linking this data together is essential for a wide range of research including:

  • Investigating common and rare diseases
  • Comparing different modalities to treat diseases
  • Real world evaluation of policies, services, drugs and devices
  • Studying the origin, associated conditions and outcomes of disease
  • Monitoring the health and wellbeing of Australians across the life course

For examples of research conducted using linked data click here.

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UPDATES

COVID-19

PHRN is closely monitoring the COVID-19 situation and has taken steps to mitigate the risk of transmission to our staff. In line with advice on social distancing, all staff at PHRN program office have moved to work from home and are currently working in line with our usual work patterns. We will be participating in any meetings we need to attend remotely via Zoom. We are reviewing our work plans in light of the current situation and will make changes as required to ensure we are serving our network, researchers and community in this changing situation.

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NEWS & EVENTS

LATEST NEWS

Listen to our Webinar Wednesday by Dr Melissa O’Donnell from @telethonkids talk on "Using linked data to provide evidence for improved policy and support for vulnerable children and families."

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