What is Data Linkage

What is Data Linkage

What is data linkage?

Data linkage, in simple terms, is a method of bringing together information, from different sources, but relating to the same individual or event. PHRN data linkage units link existing information from different health and health related data collections to provide data to researchers approved research. This is done using methods which minimise the risks to individual privacy.

What are the benefits of data linkage?

Many of our life experiences from the moment we are born until our death generate data that is collected and used for a range of purposes. For example, information is routinely collected when you go to school, visit a hospital, when you get married or divorced and when you have a baby. This data is collected by different organisations all over Australia.

Linking this data together is essential for a wide range of research including:

  • Investigating common and rare diseases
  • Comparing different modalities to treat diseases
  • Real world evaluation of policies, services, drugs and devices
  • Studying the origin, associated conditions and outcomes of disease
  • Monitoring the health and wellbeing of Australians across the life course

For examples of research conducted using linked data click here.

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POSTPARTUM DEPRESSION

CASE STUDY

Being aware of mental health issues during and after pregnancy is critical. Our short animation demonstrates the benefits of research using linked data in this area.

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NEWS & EVENTS

LATEST NEWS

5 March 2019 - Registrations are now open for the March and April 2019 Data Linkage Webinars with ACTA and PHRN.

HOW TO APPLY FOR CROSS-JURISDICTIONAL LINKED DATA

ONLINE APPLICATION SYSTEM