March-April 2019 – Data linkage webinar series

March-April 2019 – Data linkage webinar series

Tuesday, March 05, 2019

Data linkage is the bringing together of records from different data collections related to the same individual. It can be useful in the context of clinical trials in a number of ways, including:

  • A less burdensome method of data collection for participants during a clinical trial
  • Cost-effective medium to long term follow-up of clinical trial participants
  • Measurement of healthcare use before and after an intervention to assist in effectiveness and health economic analysis
  • Post-market surveillance of therapeutics

Australia has a national data linkage network, the Population Health Research Network (PHRN) that enables existing health data from around the nation to be brought together and made available for research purposes. To date, the PHRN infrastructure has been infrequently used by clinical trials researchers.

ACTA and the PHRN have developed this series of webinars to:

  • Introduce clinical trial researchers to the PHRN facilities and services available
  • Demonstrate the benefits of using linked data in clinical trials research
  • Assist clinical trial researchers to design clinical trials using linked data and apply for access to linked data

We gratefully acknowledge support from the Australian Research Data Commons (ARDC) in delivering this project to you.

This series consists of four sessions. The webinar content is outlined below.

Wednesday, 20 March⋅1:00 – 2:00pm AEDT REGISTER  
PHRN Data Linkage 1 – designing CTs using Linked Data – Dr Felicity Flack 

Wednesday, 27 March⋅1:00 – 2:00pm AEDT REGISTER   
PHRN Data Linkage 2 – Accessing Linked Data – Dr Felicity Flack 

Wednesday, 3 April⋅1:00 – 2:00pm AEDT REGISTER        
PHRN Data Linkage 3 – Ethical considerations – Dr Felicity Flack 

Wednesday, 10 April⋅1:00 – 2:00pm AEDT REGISTER       
PHRN Data Linkage 4 – Accessing MBS/PBS data – Dr Anna Kemp-Casey 

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PHRN COVID-19 Offering

Our network remains open. The network is interoperable and can source expertise, technology and data from around the country. Our expert staff are highly qualified and experienced in linkage of patient data, including population-based administrative data (such as hospital admissions, notifiable diseases and death data) as well as linkage of research cohort data. In addition, we provide secure file transfer and secure remote access services. We are able to work with other NCRIS capabilities to deliver coordinated access to national research infrastructure.

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EARLY BIRD DISCOUNT! 2020 IPDLN Conference | Data Linkage: Information to Impact | 1 - 13 November 2020 A global conference | across time zones | live and on-demand content