March-April 2019 – Data linkage webinar series

March-April 2019 – Data linkage webinar series

Tuesday, March 05, 2019

Data linkage is the bringing together of records from different data collections related to the same individual. It can be useful in the context of clinical trials in a number of ways, including:

  • A less burdensome method of data collection for participants during a clinical trial
  • Cost-effective medium to long term follow-up of clinical trial participants
  • Measurement of healthcare use before and after an intervention to assist in effectiveness and health economic analysis
  • Post-market surveillance of therapeutics

Australia has a national data linkage network, the Population Health Research Network (PHRN) that enables existing health data from around the nation to be brought together and made available for research purposes. To date, the PHRN infrastructure has been infrequently used by clinical trials researchers.

ACTA and the PHRN have developed this series of webinars to:

  • Introduce clinical trial researchers to the PHRN facilities and services available
  • Demonstrate the benefits of using linked data in clinical trials research
  • Assist clinical trial researchers to design clinical trials using linked data and apply for access to linked data

We gratefully acknowledge support from the Australian Research Data Commons (ARDC) in delivering this project to you.

This series consists of four sessions. The webinar content is outlined below.

Wednesday, 20 March⋅1:00 – 2:00pm AEDT REGISTER  
PHRN Data Linkage 1 – designing CTs using Linked Data – Dr Felicity Flack 

Wednesday, 27 March⋅1:00 – 2:00pm AEDT REGISTER   
PHRN Data Linkage 2 – Accessing Linked Data – Dr Felicity Flack 

Wednesday, 3 April⋅1:00 – 2:00pm AEDT REGISTER        
PHRN Data Linkage 3 – Ethical considerations – Dr Felicity Flack 

Wednesday, 10 April⋅1:00 – 2:00pm AEDT REGISTER       
PHRN Data Linkage 4 – Accessing MBS/PBS data – Dr Anna Kemp-Casey 

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Data linkage has a significant role in reduction of cervical cancer in Australia. The HPV vaccine was introduced in 2007, success of the vaccine was monitored by linking vaccine registers to cervical smear registers in Queensland & Victoria.

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Please note our Christmas and New Year office shutdown days and times for the Program Office and the rest of our data linkage infrastructure. We wish you a Merry Christmas and a Happy New Year!