March-April 2019 – Data linkage webinar series

March-April 2019 – Data linkage webinar series

Tuesday, March 05, 2019

Data linkage is the bringing together of records from different data collections related to the same individual. It can be useful in the context of clinical trials in a number of ways, including:

  • A less burdensome method of data collection for participants during a clinical trial
  • Cost-effective medium to long term follow-up of clinical trial participants
  • Measurement of healthcare use before and after an intervention to assist in effectiveness and health economic analysis
  • Post-market surveillance of therapeutics

Australia has a national data linkage network, the Population Health Research Network (PHRN) that enables existing health data from around the nation to be brought together and made available for research purposes. To date, the PHRN infrastructure has been infrequently used by clinical trials researchers.

ACTA and the PHRN have developed this series of webinars to:

  • Introduce clinical trial researchers to the PHRN facilities and services available
  • Demonstrate the benefits of using linked data in clinical trials research
  • Assist clinical trial researchers to design clinical trials using linked data and apply for access to linked data

We gratefully acknowledge support from the Australian Research Data Commons (ARDC) in delivering this project to you.

This series consists of four sessions. The webinar content is outlined below.

Wednesday, 20 March⋅1:00 – 2:00pm AEDT REGISTER  
PHRN Data Linkage 1 – designing CTs using Linked Data – Dr Felicity Flack 

Wednesday, 27 March⋅1:00 – 2:00pm AEDT REGISTER   
PHRN Data Linkage 2 – Accessing Linked Data – Dr Felicity Flack 

Wednesday, 3 April⋅1:00 – 2:00pm AEDT REGISTER        
PHRN Data Linkage 3 – Ethical considerations – Dr Felicity Flack 

Wednesday, 10 April⋅1:00 – 2:00pm AEDT REGISTER       
PHRN Data Linkage 4 – Accessing MBS/PBS data – Dr Anna Kemp-Casey 

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PHRN is closely monitoring the COVID-19 situation and has taken steps to mitigate the risk of transmission to our staff. In line with advice on social distancing, all staff at PHRN program office have moved to work from home. Staff are currently all working in line with our usual work patterns and our landline numbers are being diverted to staff at home, so will either be answered, or it will be possible to leave a voicemail. Please bear with us as we move to this new way of working. We will be participating in any meetings we need to attend remotely via Zoom. We are reviewing our work plans in light of the current situation and will make changes as required to ensure we are serving our network, researchers and community in this changing situation.

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WA Department of Health is seeking to establish a contract for the provision of an expert resource which will provide consultation to the Department of Health and the Department of Jobs, Tourism and Industry on a joint initiative. The ‘Strategic Linkage Advisor’, will provide strategic linkage advice, research, analysis, stakeholder management and inter-governmental coordination on matters relating to data linkage.