Story Detail

As part of the PHRN Therapeutic Development Strategy it was identified that mechanisms for accessing linked aggregate data are in demand from the therapeutics development sector to support feasibility assessment and planning of clinical trials.

This project aimed to investigate the preconditions for establishing such a service within at least one Australian jurisdiction and identify relevant governance issues that must be addressed. A key deliverable was a service blueprint for making linked aggregated data accessible to the therapeutic development sector. It was anticipated that the blueprint would be prototyped within at least one Australian jurisdiction and describe a service that is relevant, usable and desirable for the sector as well as viable within the PHRN context and current operating model.

The conclusions and recommendations from the project were:

1. Aggregated Data Output is feasible, with well defined cohort, variables and active input from researchers.
2. Address identified issues, leverage issues to gain clarity prior to commencement of linkage, and educate requesters about limitations of linked aggregated data service.
3. Data Linkage Queensland to replicate the prototyping exercise with QLD data.

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Project Status:  Complete