Using general practice data in research
The challenge:
Over 80% of Australians see their GPs each year, making the information held in general practice (GP) the most comprehensive record of the health of all Australians.
The project aims to answer the question: ‘How can we enhance public confidence in the secondary use of general practice data for research purposes?’
GP data are an important resource for researchers, policymakers and planners. In recent years, initiatives to harness “the largest and most comprehensive electronic database” on the health of the Australian population have exploded. There are now over 100 primary care datasets available in Australia.
However, these datasets are not being used to their full potential. Alongside technical reasons related to poor data quality and the lack of standardisation of and interoperability between clinical software tools, “fear, reticence and lack of trust” amongst GPs and patients is the most frequently cited reason. In addition, legal and policy frameworks in Australia are poorly suited to support the use of general practice data for research.

The approach:
In this project, we will use co-design and deliberative approaches, bringing together the public, GPs, policymakers and regulators, to design a best practice framework for the use of general practice data for research purposes.
The outcome will be policies, practices and regulatory guidance to enhance the social, ethical and legal acceptability of the use of general practice data for research.
Our collaborators:
- Population Health Research Network (PHRN) (Project Lead)
- Digital Health CRC
- University of Wollongong
- Macquarie University
- Health Consumers NSW
- Department of Health and Aged Care
Status:
Ongoing
Related resources:
Report: Building Public Confidence in the Secondary Use of General Practice Data for Research Legal, Ethical & Policy Issues, 2025
Article: Access to General Practice Data for Research in Australia: The Need for Greater Clarity in Relation to Privacy and Confidentiality. 2025
Video presentation: Annette Braunack Mayer – 2024 MUSC Precision Health Research Symposium, 2024
Article: General practitioners’ perspectives on data linkage in Australian general practice, 2024
Article: Views of general practice staff on sharing general practice data for research: a scoping review protocol, 2024
Article: Community views on the secondary use of general practice data: findings from a mixed-methods study, 2024
Article: Public knowledge of general practice data sharing: findings from a focus group study and cross-sectional survey, 2023
Report: Ethical, Legal and Social Implications of Using General Practice Data in Research, 2022